Shanavia's Dream
Sickle Cell Organization
“Together, we can make a difference”
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"On a mission to bring
awareness about Sickle Cell to our communities”
As of Janurary 2024, SDSCO is now in partnership with SCMA!
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As of July 2024, SDSCO is now in partnership with North Central Family Medicine (NCFM) Sickle Cell Support Group. NCFM is a Federally Qualified Health Center based in Rock Hill, South Carolina. It serves over 10,000 patients annually, with 69% between the ages of 18 and 64 and nearly 73% from racial minorities.
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How Can We Help?
Contact Information:
Email: Shanaviasdream@gmail.com
Telephone: 843-887-2101
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Instagram:
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All About SDSCO
Shanavia’s Dream Sickle Cell Organization is a non-profit organization created in February 2023 to assist those with the disease in small/rural communities. The goals of the organization include assistance with pain management, childcare while receiving treatment, transportation, and accessing resources not directly offered by the organization. This non-profit was created in memory of the late Shanavia Wright of Mcclellanville, SC where the first building is scheduled to be operated.
Meet our
Warriors!!!
Meet Jordynn
Jordynn Is SDSCO’s ambassador. she is a warrior and we are proud to have her alongside our team!
there will be more to come from her soon!
Meet omari!
Hi, my name is Omari Thomas, I am nine years old. And I'm living with sickle hemoglobin C. Which is also knowing as type (SC) sickle cell disease. I was diagnose with sickle cells at 2 months old. So far my journey has been blessed. I'm so grateful for friends and family, for the support. I am a sickle cell warrior.
meet janay!
“Hello! I'm Janay, 29 year old with SS sickle cell disease. It's tough. Since I was a little girl I missed out on many things during the winter and summer season, especially going out to the pool or beach. It's either getting dehydrated and not warm enough never in between that will send me into immediate crisis. Over the years I've learned my own ways to cope with this disease and 1 of them is having a strong support system. Through all the difficulties I was able to give birth to a healthy baby boy who is now 5. He's my motivation to keep going even on the days I can't get out of bed because I know I have someone depending on me. I'm on career path in the healthcare world working as a CMA. One of my biggest strengths is being a nurturer, soon I will be a RN and my desire is to work with sickle cell patients in the hospital setting.”
meet Jaedyn!!
I’m a little shy to tell my story just nervous Hello, My Name is Jaedyn Gibson I'm 18 yrs old the owner of JaeBakeez. Local Young Baker In the Georgetown community. We serve sweet treats and flour-based food baked in the oven such as cakes pies jars, cupcakes, etc. I'm a self-taught baker. #YoungBoss! I'm a sickle-cell warrior, entrepreneur, philanthropist, baby-sitter, and honor roll student.
My journey to being an entrepreneur started when I was homebound. I wanted to do something that took my pain away so I started to bake in my mom's kitchen. After I have gotten compliments from so many people, I decided that I wanted to make more of what people were asking for. I marketed my business on Facebook and got raving fans. My signature desserts are known to be sold within 30 minutes. My peach cobbler with a twist among many have customers coming back for more.
I babysit, tutor, and even encourages my baby sister to do the same. Myself is not only a successful teenager but also an honor roll student I have a dream of becoming a doctor for sickle-cell patients.
https://www.arichlife.co/podcast/jaebakez
https://www.postandcourier.com/georgetown/community/local-girl-buys-meals-for-first-responders-essential-workers/article_a0cd90ec-9f74-58d1-b947-81122da5429d.html
Business Page: JaeBakeez
IF NOT YOU THEN WHO 💕👩🏽⚕️
Dr. Jaedyn IN THE MAKING ❤️💕
Sickle Cell Warrior❤️
Optimism Preventive Services ~ Vice President🧡
National Honors Society 💕
Delta Gems ❤️
National Association for the Advancement of Colored People~ Youth Board Vice President
Mary B Thomas Girls-secretary
YOU CAN DONATE TO MY BUSINESS 💓
Angel Warrior
Stachelle Shackleford
January 23, 1991-april 12, 2024
Hi my name is Stachelle (Stacey) Shackleford. I'm 33 years old and was born and raised in Georgetown, SC. I have two siblings and I'm the middle child. Out of the 3 of us God chose me to be the warrior to fight Sickle Cell Anemia (Type SS). I have a beautiful daughter who makes everyday worth waking up and fighting through. I've undergone many surgeries, blood transfusions, hospital stays, and hospital scares. Doctors had given up on me several times but God had other plans for my life! My dream is to be a voice for other warriors who may feel alone. I want to love and support others the way my family loves and supports me. One thing I want others to know about sickle cell is our outside doesn't always reflect the pain, strain, and weakness we are experiencing inside. A message to warrior family members: You all are soldiers fighting alongside us in this battle everyday. Although we may not express it much, we are forever grateful for each of you because we don't fight alone.
Meet Aiyana Mayers!
She is 11 years old, and will be 12 on 8/15. She was born at 26 weeks at 2lbs 2oz. While in the NICU she was diagnosed with Sickle Cell type SS. For a long time it has been pretty good for Aiyana. Hospital stays was only because she was sick with 101 fever. 2 1/2 years ago Aiyana had a stroke that made her go back to a 4 yr old level. She was also left with partial of her eye sight. This past March she had another stroke but very minor. Due to the strokes we are looking into gene therapy and bone marrow transplant for a cure. I always thought she couldn't do sports like track, but with monitoring and getting to know her body we are easing into it bit by bit. Aiyana has been loving it, and doing very well. She's my Shero for sure.
Meet our team!
In June of 2021 I didn’t know much about Sickle Cell, but I did know that this disease did take the life of someone I loved dearly. My 21 year old sister Shanavia Wright. In February 2023, I stepped out on faith, quit my full-time job as a traveling phlebotomist to start a nonprofit in her memory. We have helped many families around the community with our resources. I am a 31 year old veteran of Mcclellanville, SC. Helpng warriors and their families are my passion.
Keosha Garrett
President
vice presideNT
Vesha Jamison
Vesha Jamison is an avid leader and supporter in the Sickle Cell arena. Her passion in advocacy began in 2010 after the birth her son, Dreylan, who was diagnosed with Sickle Cell Anemia (Hbg SS). Since then, she has worked tirelessly to spread awareness. He is her WHY!
Currently, Vesha serves as the Sickle Cell Account Manager for the state of South Carolina with the American Red Cross, and she has been with the company since August of 2021. Vesha also serves on the South Carolina Sickle Cell Disease Advocacy Team, the Sick Cells Ambassadors’ Team, National Association of Community Health Workers, and a board member and volunteer for several advocacy organizations. Her 12 years of community outreach and persistent efforts to sound the alarm and bring Sickle Cell Disease to the forefront, has allowed her to be able to speak on many platforms locally and also nationally. Vesha and her son have made impressions by being featured on the CBS Evening News with Nora O’Donnell and Good Morning America and currently the face of the American Red Cross’ Fall Launch: Joined by Blood. In addition, she conjunctively works with other moms, sickle cell warriors, advocacy partners, medical professionals, and community organizations. Vesha uses that experience to build long term partnerships by educating others on sickle cell disease and the importance of blood donation in the black and African American community. Her motto is ”They fight every day, and so should we.”
Patrrice simmons
Secretary
Patrice M. Simmons a native of the Tibwin section of McClellanville, SC, is an Mother, community advocate and presents over 19 years of hospitality, food and beverage, administrative, human resource, clerical and management experience. Patrice specializes in training and operations management. Patrice is a powerful force in the workplace and uses her positive attitude and tireless work ethic to encourage and lead others to work hard and succeed. Patrice is inspired daily by her daughter to be the best at anything that she does.
William Garrett iii
TEAM member
Shawn Garrett is a Certified Community Health Worker for Tidelands Health. He has been employed with Tidelands Health for over 16 years and holds an Associates Degree in Medical Assisting. Mr. Garrett currently is studying at Liberty University working towards his Bachelor's Degree in Human Services. He currently serves as a Board Member for the State of South Carolina Community Health Worker Association and is an Ambassador for the State of South Carolina with the University of South Carolina Public Health Center for Community Health Alignment. Mr. Garrett also is a Certified Pre-Diabetes Prevention Coach in the community. In Mr. Garrett's spare time he mentors children and teens in Georgetown County as well as advocates for his community to bring more resources to the area. He currently resides in Georgetown, SC with his family.
Kia Daniels
Board Member
Takia (Kia) Daniels is a Certified Community Health Worker at Tidelands Health where she has been employed for over 13 years. She is currently pursuing a degree in Health and Human Services at Ultimate Medical Academy. Mrs. Daniels is a certified lifestyle coach for the Diabetes Prevention Program and a practitioner for the Positive Parenting Program (Triple P) in her community. She also serves as a board member for The Salvation Army, President of Georgetown County Foster Parents Association, Foster Parent Advisory Board for South Carolina, and a member of the Georgetown County Early Learning Council. Mrs. Daniels has been married to Christopher Daniels for 12 years. They have one son and are therapeutic foster parents.
sHANTESKIA bRYANT
bOARD Member
Shanteskia Bryant Is a licensed practical nurse at Grand Strand Pediatrics and Adolescence Medicine. She has been employed there for five years and training new hires for three years. Shanteskia is currently pursuing her associates and applied science at Horry Georgetown Technical College to obtain her RN and go on to become a nurse practitioner. Shanteskia pride herself on having an open mind to learn more and the ability to relate. She currently resides in Conway, South Carolina with her husband of 10 years and two children.
sHEKIA gARRETT
TEAM Member
Shekia Garrett is a native of Mcclellanville, SC. She is also the first cousin of Shanavia Wright, whom the foundation was created in memory of. Ms. Garrett hold a bachelor’s degree in Healthcare Administration from the University of Arizona, while pursing her masters in Public Health with a concentration in epidemiology. Shekia is a member of the Yellow Belt Project improvement program at the local veterans hospital and also the SC Chamber of commerce healthcare committee. When’s she not busy being a mother to her daughter, she is actively working within her community and workplace to help make improvements within healthcare.
Shalissa Manigault
bOARD Member
SDSCO’s
1st Annual Gala
2nd Annual In Memory of Shanavia Sickle Cell Awareness Day Event and Blood Drive
06-10-2023
JUNE 5, 2023
THE CITY OF MCCLELLANVILLE GRANTED JUNE 10TH
(SHANAVIA'S BIRTHDAY)
OF EVERY YEAR "IN MEMORY OF SHANAVIA SICKLE CELL AWAENESS DAY" IN THE CITY OF MCCLELLANVILLE,SC.
NETWORKING IN
THE COMMUNITY!
INTERVIEW WITH THE POST AND COURIER ABOUT GETTING MORE BLACK DONORS TO DONATE BLOOD.
CLICK LINK BELOW!
SDSC'S INTERVIEW WITH
"LIVING LOCAL CAROLINA"
OUR FAMILY AND FRIENDS HONORING
WORLD SICKLE CELL DAY 2023
A LETTER TO MY SISTER..
SHANAVIA WORDS CANT DESCRIBE THE HURT, PAIN, & EMPTINESS I FEEL IN MY HEART.. I MISS YOU SO MUCH BABYGIRL.. I JUST KEEP THE GOOD MEMORIES CLOSE TO MY HEART.. IM GONNA CONTINUE THIS FIGHT THE WAY YOU WOULD HAVE WANTED ME TO... I DONT WISH THIS PAIN ON ANYONE.. ONE DAY I WILL SEE YOU AGAIN AND I WILL HUG YOU SOOO TIGHT AND NEVER LET GO.. SOME DAYS ARE HARDER THAN OTHERS BUT EVERYDAY I MISS YOU.. THE LONGER THE TIME.. THE MORE MISSING YOU HURTS.. THEY SAY TIME HEALS ALL WOUNDS BUT MAN DID THEY LIE.. AS THE TEARS FALL ONTO MY KEYBOARD AS I TYPE THIS LETTER I JUST WANT YOU TO KNOW THAT IM GONNA KEEP YOUR NAME ALIVE AND HELP ALL WARRIORS ALL AROUND THE WORLD SHANAVIA.. I CANT WAIT TO SEE YOU AGAIN.. BUT NOT TOO SOON.. I MUST COMPLETE THIS TASK GOD HAS FOR ME IN YOUR NAME I LOVEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE YOU.. SEE YOU LATER...
"ITS BEEN A LONG DAY WITHOUT YOU MY FRIEND.. ILL TELL YOU ALL ABOUT IT WHEN I SEE YOU AGAIN..."
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